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Volume 13, Issue 1 (1-2025)
J. Pediatr. Rev 2025, 13(1): 5-16 |
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Khalili A, Cheraghi F, Fayyazi A, Soltanian A, Shamsaei F. Care Needs of Parents With Epileptic Children: A Systematic Review. J. Pediatr. Rev 2025; 13 (1) :5-16
URL: http://jpr.mazums.ac.ir/article-1-605-en.html
URL: http://jpr.mazums.ac.ir/article-1-605-en.html
1- Student Research Committee, School of Nursing and Midwifery, Hamadan University of Medical Sceinces, Hamadan, Iran.
2- Chronic Diseases (Home Care) Research Center, Institute of Cancer, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Pediatric Nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran.
3- Autism Spectrum Disorders Research Center, Institute of Neuroscience and Mental Health, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Pediatrics, School of Medicine, Hamadan University of Medical Sciences, Hamadan, Iran.
4- Modeling of Noncommunicable Diseases Research Center, Institute of Health Sciences and Technologies, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran.
5- Behavioral Disorders and Substance Abuse Research Center, Institute of Neuroscience and Mental Health, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Psychiatric Nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran. ,shamsaei68@yahoo.com
2- Chronic Diseases (Home Care) Research Center, Institute of Cancer, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Pediatric Nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran.
3- Autism Spectrum Disorders Research Center, Institute of Neuroscience and Mental Health, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Pediatrics, School of Medicine, Hamadan University of Medical Sciences, Hamadan, Iran.
4- Modeling of Noncommunicable Diseases Research Center, Institute of Health Sciences and Technologies, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran.
5- Behavioral Disorders and Substance Abuse Research Center, Institute of Neuroscience and Mental Health, Avicenna Health Research Institute, Hamadan University of Medical Sciences, Hamadan, Iran. & Departments of Psychiatric Nursing, School of Nursing and Midwifery, Hamadan University of Medical Sciences, Hamadan, Iran. ,
Abstract: (474 Views)
Background: Understanding the care needs of parents with epileptic children is crucial, as they experience unique challenges affecting their mental and physical health.
Objectives: This study aims to investigate the needs of parents caring for children with epilepsy.
Methods: This is a systematic review study. A search was conducted in databases such as PubMed, Web of Science, and Scopus for related articles published from 1975 to 2023, using keywords “epilepsy”, “children”, “parents”, “caregivers”, “care needs”, and “unmet needs”. The review followed the preferred reporting items for systematic reviews and meta-analysis (PRISMA) guidelines. Finally, 30 articles were selected for review after quality appraisal using the critical appraisal skills program (CASP) and strengthening the reporting of observational studies in epidemiology (STROBE) checklists.
Results: The care needs were identified as psychological, educational, supportive, economic, social, and unmet needs. Parents expressed their supportive, economic, and social needs to reduce the burden of caregiving; their educational needs to cope with epilepsy; their psychological needs to reduce stress and anxiety; and their unmet needs to reduce emotional distress.
Conclusions: To improve the health status of children with epilepsy, their parents' care needs should first be considered. The healthcare providers should provide health care services to the parents of epileptic children tailored to the identified needs.
Objectives: This study aims to investigate the needs of parents caring for children with epilepsy.
Methods: This is a systematic review study. A search was conducted in databases such as PubMed, Web of Science, and Scopus for related articles published from 1975 to 2023, using keywords “epilepsy”, “children”, “parents”, “caregivers”, “care needs”, and “unmet needs”. The review followed the preferred reporting items for systematic reviews and meta-analysis (PRISMA) guidelines. Finally, 30 articles were selected for review after quality appraisal using the critical appraisal skills program (CASP) and strengthening the reporting of observational studies in epidemiology (STROBE) checklists.
Results: The care needs were identified as psychological, educational, supportive, economic, social, and unmet needs. Parents expressed their supportive, economic, and social needs to reduce the burden of caregiving; their educational needs to cope with epilepsy; their psychological needs to reduce stress and anxiety; and their unmet needs to reduce emotional distress.
Conclusions: To improve the health status of children with epilepsy, their parents' care needs should first be considered. The healthcare providers should provide health care services to the parents of epileptic children tailored to the identified needs.
Type of Study: Systematic Review |
Subject:
Neurology
Received: 2024/02/10 | Accepted: 2024/11/18 | Published: 2025/01/21
Received: 2024/02/10 | Accepted: 2024/11/18 | Published: 2025/01/21
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