Mon, May 5, 2025
Volume 12, Issue 2 (4-2024)
J. Pediatr. Rev 2024, 12(2): 199-204 |
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Nikkhah A, Nasehi M M, Moosazadeh M, Saket S, Afshari M, Alizadeh-Navaei R. Investigating the Profile of Multiple Sclerosis Registry Among Iranian Children: Background, Aims, Design, and Preliminary Results. J. Pediatr. Rev 2024; 12 (2) :199-204
URL: http://jpr.mazums.ac.ir/article-1-457-en.html
URL: http://jpr.mazums.ac.ir/article-1-457-en.html
Ali Nikkhah1 
, Mohammad Mahdi Nasehi *2 , Mahmood Moosazadeh3 , Sasan Saket1 , Mahdi Afshari4 , Reza Alizadeh-Navaei4
, Mohammad Mahdi Nasehi *2 , Mahmood Moosazadeh3 , Sasan Saket1 , Mahdi Afshari4 , Reza Alizadeh-Navaei4
1- Department of Pediatric Neurology, Pediatric Neurology Research Center, School of Medicine, Mofid Children’s Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
2- Department of Pediatric Neurology, School of Medicine, Mofid Children’s Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran. ,mmnasehi@gmail.com
3- Gastrointestinal Cancer Research Center, Non-communicable Diseases Institute, Mazandaran University of Medical Sciences, Sari, Iran.
4- Pediatric Gastroenterology and Hepatology Research Center, Zabol University of Medical Sciences, Zabol, Iran.
2- Department of Pediatric Neurology, School of Medicine, Mofid Children’s Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran. ,
3- Gastrointestinal Cancer Research Center, Non-communicable Diseases Institute, Mazandaran University of Medical Sciences, Sari, Iran.
4- Pediatric Gastroenterology and Hepatology Research Center, Zabol University of Medical Sciences, Zabol, Iran.
Abstract: (1534 Views)
Background: According to previous reports, between 2%-5% of multiple sclerosis (MS) cases occur before the age of 16 years.
Objectives: This study aims to investigate the clinical and epidemiological features of MS in Iranian children to provide diagnostic criteria for policymakers and physicians.
Methods: This study objectives are achieved in two phases. The first phase was conducted and the second phase is underway. The first phase was performed in one year to design and finalize a pediatric MS registry software. For this reason, all variables and registration methods were determined. The second phase which has been started since 2016 consists of a routine data registry in the national phase. The project information, including all cases, epidemiological, clinical, and diagnostic factors is being reported based on different geographical areas of Iran.
Results: We registered 932 cases with MS since 2017, of whom 74.4% were girls. There was no significant difference in mean age between girls and boys with MS (mean difference=0.73 years, P=0.133). Most of the children who were diagnosed were between the ages of 15 to 18 years (52.4%).
Conclusions: The registry for MS in children in Iran can improve the knowledge of health policymakers on the incidence of MS in children throughout the country, the first and most common symptoms of MS in children, raising physicians’ awareness about early diagnosis and treatment that consequently reduce the economic, psychological, and psychological burden of the disease.
Objectives: This study aims to investigate the clinical and epidemiological features of MS in Iranian children to provide diagnostic criteria for policymakers and physicians.
Methods: This study objectives are achieved in two phases. The first phase was conducted and the second phase is underway. The first phase was performed in one year to design and finalize a pediatric MS registry software. For this reason, all variables and registration methods were determined. The second phase which has been started since 2016 consists of a routine data registry in the national phase. The project information, including all cases, epidemiological, clinical, and diagnostic factors is being reported based on different geographical areas of Iran.
Results: We registered 932 cases with MS since 2017, of whom 74.4% were girls. There was no significant difference in mean age between girls and boys with MS (mean difference=0.73 years, P=0.133). Most of the children who were diagnosed were between the ages of 15 to 18 years (52.4%).
Conclusions: The registry for MS in children in Iran can improve the knowledge of health policymakers on the incidence of MS in children throughout the country, the first and most common symptoms of MS in children, raising physicians’ awareness about early diagnosis and treatment that consequently reduce the economic, psychological, and psychological burden of the disease.
Type of Study: Original Article |
Subject:
Pediatric Neurology
Received: 2022/02/17 | Accepted: 2023/01/10 | Published: 2024/04/1
Received: 2022/02/17 | Accepted: 2023/01/10 | Published: 2024/04/1
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